A Weight is Lifted

Today it feels as if a weight has been lifted right off my shoulders. Maggie and I went to see Dr. T this morning to finish up the crazy week of medical appointments. We talked to him about the 1st and 2nd ENT appointments and I asked him some clarifications questions. I wanted to know about where she is immune wise and some more information on this recent infection.

Dr. T's feeling is her status hasn't changed on her immune deficiency. He did take blood a month early to make sure her IgG numbers are where he wants them. The only thing he is somewhat concerned about is if they have dropped. If they have we re-immunize her again. On the infection he said the big concern is her drug allergies. The infection was normal for a kid with Selective IgA Deficiency. The problem is he can't treat her how he would usually treat a patient with that infection. Her allergies limit the antibiotics that can be used. This makes it hard to get rid of the infection anywhere it is. If Ricks had the same infection, this whole thing would be a complete different story.

I have complete confidence in Dr. T and now we have a complete medical team to deal with the concerns at hand. Dr. Arnold has worked with Dr. T before on patients with immune deficiencies. They will consult together and decide the best way to treat the infection at hand. Also, they will discuss the long term concerns with the antibiotics/infections. The stress of having to manage different doctors is gone because they will communicate and I won't have to be the middle man.

It is stinky that Mags still doesn't feel well. It could take 2 to 3 weeks for them to come to some conclusion because Dr. T also wants us to pursue the migraine angle. He is going to get us into the headache doctor within the next 2 weeks. He wants to rule that out for diagnosis purposes. So we may not come to a resolution or fix for what ails Mags until end of June beginning of July. I feel bad for her and that this is becoming her "normal". She is starting to just accept how she feels and lives her life. It is good but a bit sad for her Momma.

The positives is that she is still a happy and active kid. There are so many mothers who have sick children who are not able to run and swing. They have to sit by their child's bedside and pray, not for a resolution, but a miracle. I am aware deep into my soul that I am so blessed. This may seem like a cross to bear sometimes but it holds its blessings. It tests my faith and strengthens it all at the same time. I am not the same Mom who walked into this crisis a month ago. I am better and stronger. And my girl has shown her own amazing strength and faith. I don't always know the reason or the plan but I know that God's love and strength can bring us through anything. I copied this saying off of facebook a little while ago and it says it all for me tonight:

We may not know what tomorrow holds,
but we know that God holds all of our tomorrows
and that is enough.

(When God Meets Cancer - Lynn Eib)