I have spent a lot of time praying the last 24 hours for a 2nd opinion ENT who would listen and communicate well. Today Maggie had her appointment and after an hour wait we finally saw the doctor. His name is Dr. Arnold and he was pretty good. He came in and talked with Maggie directly (something Dr. Sprecher never did). I started with the immune deficiency and he had lots of questions and listened to my answers. After reviewing my "list" or "timeline" I had made he examined Maggie. Finally, he said that with her immune issues and her antibiotic concerns an aggressive approach might be the way to go. First he wants to touch base with Dr. T.
AMEN and ALLELUIA!!!!!!!!!!!! A doctor who was willing to discuss and explain what is happening with my baby. And we get the bonus of he is going to consult with the person who knows the most about what is going on with her. This is not a decision made from a 15 minute exam and ct scan. It is a more well-rounded diagnosis and consult. I now feel a bit grateful that our appointment with Dr. Sprecher went so badly because we know have a team player joining Maggie's medical team (hopefully).
I am exhausted after the week's ENT journey but I think we are in the right spot. I don't know the outcome or what the whole process will be. I do know that I just have to do the next right thing and hand it over. It is out of my hands now and we just have to wait to hear. Dr. Arnold will contact us sometime next week. I have an appointment with Dr. T tomorrow for Maggie. It looks like it will be just to fill him in on the change and review with him where Maggie is. I feel like this could be a long journey so I will pray for continued patience and strength. And I think I will add a prayer for a pep up to my sense of humor : )
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