Special People

This weekend was one of our worst. Maggie had such a hard time with the visiting nurses and the IV's. This morning I was still exhausted both physically and mentally. Emotionally, I felt like I was in some sort of Twilight Zone. I decided to skip school and try to get in sooner to Dr. T's for Mag's daily dose of antibiotic. After a call, our favorite nurse, Nicole, took us right away.

Maggie was not happy at all to hear of my IV decision. She still wanted to go to school and skip the IV all together. I grabbed a screaming child up at home, placed her in the car, picked her up at the office building and carried her into Dr. T's office. Once she saw Nicole, she began to settle a little. We did the IV, got the medicine and checked in with both Dr. Chearnin and Dr. T.

As a treat for leaving the IV in, I took Mags to lunch. She was calm and happy again. I couldn't get a word in as she chatted away. As we pulled out she told me, "Mom I just needed my Nicole to help me with my IV's. That makes it all better." What a blessing that in this time of medical craziness this angel has been sent to us.

A year ago we met Nicole during Maggie's first round of IV antibiotics. This nurse touched my little girl's soul and made a connection. Maggie adores her and talks about her even when she is healthy. She makes pictures for Nicole which still hang in Dr. T's office. Nicole shares stories about her little girls and takes time to ask Maggie lots of silly questions. I can't tell you how many times in the past year I have said a prayer of thanks for this special woman.

It sounds crazy but just checking in with Nicole, Dr. Chearnin(another special lady we have met on this journey) and Dr. T has helped calm both our nerves. I felt like I could take a breath and relax. Dr. T gave us the news that the antibiotics seem to be working, although at a snail's pace. For Maggie, Dr. T is a PI hero. She always has a smile for him and listens to what he says. She truly adores him and wants to be just like him. It is reassuring to know that she trusts the doctor who is in charge of her care. What is more reassuring is to see how much he is invested in her care. He always takes notice of her, sees her when I call and even fits her in before office hours if he has too.

It has been a hard couple of weeks and I have really felt God present in each moment. He has been present in these special people. They are His angels He has sent to take care of my girl. I truly believe he has placed them in our lives to help us manage and navigate this PI journey. And in times like these, He has spoken through them with words of wisdom, strength and support. I cherish everyone of them. Even if we have to move on to a different medical team (breaks my heart to even think of) I will remember each one of them with much love.