Pondering

Tonight I was lucky to have a conversation with another PI Mom. Her son has a much more serious PI and is a lot sicker. I feel grateful that she has taken the time to share her wisdom on several occasions with me over the past year. Our conversation has again reminded me of how many blessings I have in my life.

I know that the past few weeks have been extremely difficult. Emotionally it has been a roller coaster for Maggie and me. I have had moments of sadness, anger, acceptance and plain out confusion. It has also deepened my faith, strengthened my relationship with my husband, helped me feel more confident as a Mom and advocate and showed me again what an amazing daughter I have.

I was reminded of all of these things plus a couple of more. It is mind-boggling that my kids were diagnosed at such an early age. The average time it takes for someone to be diagnosed with a PI is 12.4 years. Plus, to have a doctor like Dr. T - extremely lucky. The Mom I was talking to also takes her kids to Dr. T. I am not the only Mom who sings his praises and hates when he is on vacation. Thank God for a doctor who is competent and invested in my kids.

So many things to be grateful for even when the journey is a bit bumpy. God is present in all our moments and struggles. I don't know what His reasoning but I know that it is all as it should be. God's presence calms me, soothes my fears and helps me to walk through each day with strength and hope. In the end I am most grateful for having a faith and love of God to hold on to when the water gets rocky. Without His love, I would be lost in a land of dark and sadness. Again, thanks and praise for God.