So I am horrible at this blogging thing. I start and life happens so it falls in the cracks never to be heard from again. I have tried on a couple subjects and find that after a month or so I just get to busy to write. But as I sit here watching the Super Bowl, I have an itch to document the journey we have been on for the past year or so.
It all started with food allergies. I was diagnosed with a huge list in the summer of 2009. Then there was Ricky's egg allergy diagnosis in January of 2010. I thought it was the end of the world. How could I do this? How could I keep him safe? It was definitely overwhelming. I got on the internet and bought some cookbooks determined to figure it all out.
And then the shoes kept dropping. Maggie had been sick non-stop since October. If it wasn't a cold, it was croup or a high fever (which they originally thought was swine flu but we figured out it wasn't) Rick and I knew something was wrong but the doctors, esp her pediatrician, weren't interested in listening.
In March I took here to the allergist and she was diagnosed with asthma. Maybe this was it and now she would start getting better. We were wrong and soon enough I was sitting in an ER at 3 in the morning with a 3 year old who had a high fever. The doctor gave us the diagnosis (pneumonia) and an extra bonus that Maggie's white blood count was three times higher than a sick child. WHAT????!!!!!!????
The end of the story was at her appointment with the allergist/immunologist we FINALLY got our answer. Maggie had a massive sinus infection and she spent over 5 days on IV antibiotics. But we learned what lay underneath all of the illness and craziness. Maggie had a primary immune deficiency called Selective IgA Deficiency.
Relief, sadness, fear, confusion, anger, gratitude are only the name of a few feelings that went through me at the moment of her diagnosis. And I have gone through so many more the past 9 months or so. I hope to share all that has happened and all that is yet to occur. If I remember to log on!
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